The Diving Bell and the Butterfly

The Diving Bell and the Butterfly Author Jean-Dominique Bauby
ISBN-10 0307454835
Year 2008-03-06
Pages 146
Language en
Publisher Knopf Group E-Books
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In December 1995, Jean-Dominique Bauby, the 43-year-old editor of French Elle, suffered a massive stroke that left him permanently paralyzed, a victim of “locked in syndrome.” Once known for his gregariousness and wit, Bauby now finds himself imprisoned in an inert body, able to communicate only by blinking his left eye. The miracle is that in doing so he was able to compose this stunningly eloquent memoir.In a voice that is by turns wistful and mischievous, angry and sardonic, Bauby gives us a celebration of the liberating power of consciousness: what it is like to spend a day with his children, to imagine lying in bed beside his wife, to conjure up the flavor of delectable meals even as he is fed through at tube. Most of all, this triumphant book lets us witness an indomitable spirit and share in the pure joy of its own survival. From the Trade Paperback edition.

Schmetterling und Taucherglocke

Schmetterling und Taucherglocke Author Jean-Dominique Bauby
ISBN-10 9783552058668
Year 2017-06-05
Pages 136
Language de
Publisher Paul Zsolnay Verlag
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Er war 43 Jahre alt, Vater zweier Kinder und ein erfolgreicher Redakteur, als ihn am 8. Dezember 1995 ein Gehirnschlag all seiner bisherigen Lebensmöglichkeiten beraubte. Fünfzehn Monate später beendete er ein Buch, das er allein mit dem Blinzeln seines linken Augenlids - die einzige verbleibende Verständigungsmöglichkeit - diktiert hatte. Es ist ein einzigartiges Dokument, ein Akt der Selbstbehauptung des Geistes angesichts der totalen physischen Niederlage. Die Krankheit hat Bauby zu einem Schriftsteller gemacht, der mit bewundernswertem Humor seine Situation analysiert. Ein erschütterndes Selbstzeugnis, ein einzigartiges Stück Literatur und ein Buch, das Mut macht zum Leben.

Als ich unsichtbar war

Als ich unsichtbar war Author Martin Pistorius
ISBN-10 9783838711324
Year 2011-11-11
Pages 310
Language de
Publisher BASTEI LÜBBE
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Gefangen im eigenen Körper. Martin ist zwölf, als ihn eine rätselhafte Krankheit befällt: Er verliert seine Sprache, die Kontrolle über seinen Körper, ist nach wenigen Monaten völlig hilflos. Die Ärzte sagen seinen Eltern, er werde für immer schwerstbehindert bleiben. Was niemand ahnte: Im Kokon seines Körpers verbirgt sich ein schrittweise erwachender Geist und eine zutiefst lebendige Seele. Als Martin aufwacht, kann er nur mit den Augen Lebenszeichen geben. Eine Pflegerin erkennt schließlich, dass er sehr wohl bei Bewusstsein ist und alles um sich herum mitbekommt. Dann endlich erhält er die Hilfe, die er benötigt, um sich ganz ins Leben zurück zu kämpfen. Martin Pistorius erzählt bewegend und absolut authentisch darüber, was ihn in den elf Jahren der Hilflosigkeit am Leben gehalten hat. Sein dramatisches Buch über seine Erfahrungen zeigt, dass mit der Unterstützung einer Familie, die nicht aufgibt und einem großen Lebenswillen sogar Wunder möglich sind.

On the Move

On the Move Author Oliver Sacks
ISBN-10 9783644040816
Year 2015-05-30
Pages 448
Language de
Publisher Rowohlt Verlag GmbH
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Oliver Sacks war der berühmteste Neurologe der Welt. Mit seinen Fallgeschichten hat er uns einen neuen Blick auf Krankheiten und Abweichungen gelehrt: Was bei einem Patienten auf den ersten Blick als Störung erscheint, ermöglicht oft besondere Fähigkeiten der Wahrnehmung. Mit diesem Buch hat Sacks eine von fesselnder Energie getriebene Autobiographie vorgelegt. Ehrlich und anrührend beschreibt er die wichtigsten Stationen seines Lebens – das enge Großbritannien der Nachkriegszeit, das anarchische Kalifornien der frühen Sechziger, schließlich das ewig pulsierende New York. Ob er in der Forschung tätig ist oder in der klinischen Praxis, konstant bleiben die Begeisterung für die Arbeit mit den Patienten und das Schreiben darüber. Gerühmt für seine feinsinnigen Fallgeschichten, analysiert Sacks hier seinen eigenen Fall: Er erzählt von erfüllter und unerfüllter Liebe, der Beziehung zu seiner jüdischen Medizinerfamilie, zeitweiliger Drogensucht und exzessivem Bodybuilding und von unbändigen Glücksgefühlen auf den Road Trips durch die Weiten Nordamerikas. Die Lebensbilanz eines außergewöhnlichen Mediziners – und das Meisterwerk eines großartigen Erzählers.

W rdezentrierte Therapie

W  rdezentrierte Therapie Author Harvey Max Chochinov
ISBN-10 9783647402895
Year 2017-09-11
Pages 245
Language de
Publisher Vandenhoeck & Ruprecht
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Die von Harvey M. Chochinov entwickelte Würdezentrierte Therapie ist eine psychologische Kurzintervention für schwerstkranke Menschen. Auf der Grundlage eines empirisch generierten Würdemodells bildet eine Auswahl an Fragen die Vorlage für ein Interview, in dem sinnstiftende Lebensereignisse, wichtige Epochen, Lebensleistungen sowie Rollen stärkende und Stolz bewahrende Aufgabenbereiche der Patienten angesprochen werden. Letztlich wird mit den Patienten ein Dokument erstellt, das einer oder mehreren benannten Personen als Vermächtnis hinterlassen werden kann. Damit berührt die Würdezentrierte Therapie im Kern die Essenz der Persönlichkeit der Patienten sowie den Wunsch nach Generativität. Seit den ersten Veröffentlichungen zur Würdezentrierten Therapie in Kanada und den USA zu Beginn des Jahrtausends stößt dieser therapeutische Ansatz weltweit auf großes Interesse. Das Handbuch beschreibt die Entwicklung und praktische Durchführung der Würdezentrierten Therapie und stellt internationale Forschungsergebnisse zur Anwendung der Kurzintervention für Patientinnen und Patienten mit lebensverkürzenden und lebensbedrohenden Erkrankungen dar. Ausführlich dargestellte Beispiele aus dem Erfahrungsschatz des Autors unterstützen all diejenigen, die sich in der Hospiz- und Palliativversorgung für eine bestmögliche Begleitung schwerstkranker Menschen engagieren.

Pink Floyd and Philosophy

Pink Floyd and Philosophy Author George A. Reisch
ISBN-10 9780812697452
Year 2011-04-15
Pages 288
Language en
Publisher Open Court
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With their early experiments in psychedelic rock music in the 1960s, and their epic recordings of the 1970s and '80s, Pink Floyd became one of the most influential and recognizable rock bands in history. As "The Pink Floyd Sound," the band created sound and light shows that defined psychedelia in England and inspired similar movements in the Jefferson Airplane's San Francisco and Andy Warhol's New York City. The band's subsequent recordings forged rock music's connections to orchestral music, literature, and philosophy. "Dark Side of the Moon" and "The Wall" ignored pop music's ordinary topics to focus on themes such as madness, existential despair, brutality, alienation, and socially induced psychosis. They also became some of the best-selling recordings of all time. In this collection of essays, sixteen scholars expert in various branches of philosophy set the controls for the heart of the sun to critically examine the themes, concepts, and problems—usually encountered in the pages of Heidegger, Foucault, Sartre, or Orwell—that animate and inspire Pink Floyd's music. These include the meaning of existence, the individual's place in society, the interactions of knowledge and power in education, the contradictions of art and commerce, and the blurry line—the tragic line, in the case of Floyd early member Syd Barrett (died in 2006)—between genius and madness. Having dominated pop music for nearly four decades, Pink Floyd's dynamic and controversial history additionally opens the way for these authors to explore controversies about intellectual property, the nature of authorship, and whether wholes—especially in the case of rock bands—are more than the sums of their parts.

Schloss aus Glas

Schloss aus Glas Author Jeannette Walls
ISBN-10 9783455810516
Year 2012-04-19
Pages 382
Language de
Publisher Hoffmann und Campe
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Jeannette Walls ist ein glückliches Kind: Sie hat einen Vater, der mit ihr auf Dämonenjagd geht, ihr die Physik erklärt und die Sterne vom Himmel holt. Da nimmt sie gerne in Kauf, immer mal wieder mit leerem Bauch ins Bett zu gehen, ihre egomanische Künstlermutter zu ertragen oder in Nacht-und-Nebel-Aktionen den Wohnort zu wechseln. Mit den Jahren allerdings werden die sozialen Verhältnisse schlimmer, die Sprüche des Vaters schaler und das Lügengebäude der Eltern so zerbrechlich wie das Schloss aus Glas, das der Vater jahrelang zu bauen versprochen hatte.

Illness as Narrative

Illness as Narrative Author Ann Jurecic
ISBN-10 9780822977865
Year 2012-03-12
Pages 224
Language en
Publisher University of Pittsburgh Pre
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For most of literary history, personal confessions about illness were considered too intimate to share publicly. By the mid-twentieth century, however, a series of events set the stage for the emergence of the illness narrative. The increase of chronic disease, the transformation of medicine into big business, the women’s health movement, the AIDS/HIV pandemic, the advent of inexpensive paperbacks, and the rise of self-publishing all contributed to the proliferation of narratives about encounters with medicine and mortality. While the illness narrative is now a staple of the publishing industry, the genre itself has posed a problem for literary studies. What is the role of criticism in relation to personal accounts of suffering? Can these narratives be judged on aesthetic grounds? Are they a collective expression of the lost intimacy of the patient-doctor relationship? Is their function thus instrumental—to elicit the reader’s empathy? To answer these questions, Ann Jurecic turns to major works on pain and suffering by Susan Sontag, Elaine Scarry, and Eve Sedgwick and reads these alongside illness narratives by Jean-Dominique Bauby, Reynolds Price, and Anne Fadiman, among others. In the process, she defines the subgenres of risk and pain narratives and explores a range of critical responses guided, alternately, by narrative empathy, the hermeneutics of suspicion, and the practice of reparative reading. Illness as Narrative seeks to draw wider attention to this form of life writing and to argue for new approaches to both literary criticism and teaching narrative. Jurecic calls for a practice that’s both compassionate and critical. She asks that we consider why writers compose stories of illness, how readers receive them, and how both use these narratives to make meaning of human fragility and mortality.

New Essays on Life Writing and the Body

New Essays on Life Writing and the Body Author Christopher Stuart
ISBN-10 9781443808033
Year 2009-03-26
Pages 290
Language en
Publisher Cambridge Scholars Publishing
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In light of materialist revisions of the Cartesian dual self and the increased recognition of memoir and autobiography as a crucial cultural index, the physical body has emerged in the last twenty-five years as an increasingly inescapable object of inquiry, speculation, and theory that intersects all of the various subgenres of life writing. New Essays on Life Writing and the Body thus offers a timely, original, focused, and yet appropriately interdisciplinary study of life writing. This collection brings together new work by established authorities in autobiography, such as Timothy Dow Adams, G. Thomas Couser, Cynthia Huff, and others, along with essays by emerging scholars in the field. Subjects range from new interpretations of well-known autobiographies by Edith Wharton, Gertrude Stein, and Lucy Grealy, as well as scholarly surveys of more recently defined subgenres, such as the numerous New Woman autobiographies of the late 19th century, adoption narratives, and sibling memoirs of the mentally impaired. Due to their wide, interdisciplinary focus, these essay will prove valuable not only to more traditional literary scholars interested in the classic literary autobiography but also to those in Women’s Studies, Ethnic and African-American Studies, as well as in emerging fields such as Disability Studies and Cognitive Studies.

Handling the Truth

Handling the Truth Author Beth Kephart
ISBN-10 9781101620182
Year 2013-08-06
Pages 224
Language en
Publisher Penguin
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In the tradition of Anne Lamott’s Bird by Bird, a critically acclaimed National Book Award finalist shares inspiration and practical advice for writing a memoir. Writing memoir is a deeply personal, and consequential, undertaking. As the acclaimed author of five memoirs spanning significant turning points in her life, Beth Kephart has been both blessed and bruised by the genre. In Handling the Truth, she thinks out loud about the form—on how it gets made, on what it means to make it, on the searing language of truth, on the thin line between remembering and imagining, and, finally, on the rights of memoirists. Drawing on proven writing lessons and classic examples, on the work of her students and on her own memories of weather, landscape, color, and love, Kephart probes the wrenching and essential questions that lie at the heart of memoir. A beautifully written work in its own right, Handling the Truth is Kephart’s memoir-writing guide for those who read or seek to write the truth.

Lying Down in the Ever Falling Snow

Lying Down in the Ever Falling Snow Author Wendy Austin
ISBN-10 9781554588893
Year 2013-08-21
Pages 230
Language en
Publisher Wilfrid Laurier Univ. Press
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First used to describe the weariness the public felt toward media portrayals of societal crises, the term compassion fatigue has been taken up by health professionals to name—along with burnout, vicarious traumatization, compassion stress, and secondary traumatic stress—the condition of caregivers who become “too tired to care.” Compassion, long seen as the foundation of ethical caring, is increasingly understood as a threat to the well-being of those who offer it. Through the lens of hermeneutic phenomenology, the authors present an insider’s perspective on compassion fatigue, its effects on the body, on the experience of time and space, and on personal and professional relationships. Accounts of health professionals, alongside examinations of poetry, images, movies, and literature, are used to explore the notions of compassion, hope, and hopelessness as they inform the meaning of caring work. The authors frame their exposé of compassion fatigue with the very Canadian metaphor of “lying down in the snow.” If suffering is imagined as ever-falling snow, then the need for training and resources for safe journeying in “winter country” becomes apparent. Recognizing the phenomenon of compassion fatigue reveals the role that health services education and the moral habitability of our healthcare environments play in supporting professionals’ ability to act compassionately and to endure.

The Death Class

The Death Class Author Erika Hayasaki
ISBN-10 9781451642940
Year 2014-12-30
Pages 288
Language en
Publisher Simon and Schuster
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A journalist details how Norma Bowe, the professor of a popular class on the stages of dying, death, and bereavement at Kean University in New Jersey, shows her students how to truly heal and live their lives through contemplating the end.

Writing Widowhood

Writing Widowhood Author Jeffrey Berman
ISBN-10 9781438458199
Year 2015-10-07
Pages 244
Language en
Publisher SUNY Press
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Explores how memoirs of widowhood can help us understand the reality of bereavement and the critical role of writing and reading in recovery. The death of a beloved spouse after a lifetime of companionship is a life-changing experience. To help understand the reality of bereavement, Jeffrey Berman focuses on five extraordinary American writers—Joan Didion, Sandra Gilbert, Gail Godwin, Kay Redfield Jamison, and Joyce Carol Oates—each of whom has written a memoir of spousal loss. In each chapter, Berman gives an overview of the writer’s life and art before widowhood, including her early preoccupation with death, and then discusses the writer’s memoir and her life as a widow. He discovers that writing was, for all of these authors, both a solace and a lifeline, enabling them to maintain bonds with their lost loved ones while simultaneously moving on with their lives. These memoirs of widowhood, Berman maintains, reveal not only courage and resilience in the face of loss, but also the critical role of writing and reading in bereavement and recovery. “Writing Widowhood is a stunning achievement that combines biography, literary history, and theoretical and philosophical exploration into the nature of grief as well as mental illness—all seamlessly executed. Berman elegantly and lucidly conveys a range of theories and perspectives to suit both academic and general readers. Berman never compromises complexity while remaining accessible and straightforward throughout.” — Virginia L. Blum, author of Flesh Wounds: The Culture of Cosmetic Surgery “Writing Widowhood contributes to the field of autobiography/biography, and particularly to women’s writing within that generic field, by discussing five memoirs which Berman categorizes as the ‘widow memoir.’ No other critic that I know has shaped commentaries into a newly defined genre. Berman’s book, thus, makes an important contribution to the overall field.” — Linda Wagner-Martin, author of Telling Women’s Lives: The New Biography

The Gift of Memoir

The Gift of Memoir Author Diane Taylor
ISBN-10 9781772360073
Year 2015-01-06
Pages 236
Language en
Publisher BPS Books
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The Gift of Memoir is Diane Taylor's gift to writers of every kind, but especially those with a personal or family story to tell. In words that are themselves a stellar example of literary craftsmanship, Taylor shows writers how to show up, open up, and write. Her short chapters, full of practical advice and inspiring examples, cover such topics as: The all-importance of reading to writing Establishing a writing ritual Why write memoir? The importance of joining a writing community Telling the truth when you aren't sure Journaling as a kind of personal writing workshop Four strategies to retrieve memories How to use anecdotes and establish themes How to write through the five senses How to choose a form that fits your writing The revision process